Sorry for not updating sooner...

I'm sorry for not updating everyone sooner. Things have been hectic! Whew! Ok, so from the last post is where I will start. I was able to get Emma an appointment with the ENT in Jacksonville and the audiologist. We went down there and saw both of them. The audiologist said that the ear wax build up from her tube is affecting the sound and air flow in her right ear but her hearing is perfect so once that gets cleaned out she should have no issues. On to the ENT appointment....we walked in and he said he had been discussing Emma with his good friend, Dr. Midani (her ID doctor) so that made me feel at ease instantly. He looked at me and said they would get her figured out one way or another. After going over all of her records and the recommendations from her other doctors he felt like the Bronchoscope was a great idea but also said he would be doing additional testing. He will also be doing a lung lavage and taking biopsies. He is going to go all the way down to her esophagus as well but said under normal circumstances he usually doesn't but he wants to make sure everything gets looked at. He also will have her stay overnight after this procedure even though it's normally outpatient just to monitor closely which is fine by me. He and I both agreed we would rather be safe than sorry and one night is nothing compared to the peace of mind I will have. So, she has a surgery date scheduled for June 4th (yes, the day after my birthday lol!). He is also making me take her for an anesthesiology consult just to let the anesthesiologist know that she normally has a cough and fever that way the day of the surgery they don't cancel the surgery because of them. So, now on to test results. The tests that Dr. Midani (her infectious disease doctor) had done have came back and I get all the results sent to me although I don't know what a lot of them mean. We go back to him on the 28th of this month for the follow up so maybe he will have some answers. That is also the day we meet with the anesthesiologist. I'm just ready to hopefully have some kind of answers no matter what...I can handle it. On a better note, Emma got the results from her kindergarten readiness test...she made a 19 out of 20! My baby girl is so smart! :) Hopefully in the next couple of weeks we can move into our own house. I have started my own business and so far it's going well. I can't wait to see how it continues to go! I guess this is all for now. I will update when I have another thing to update about! Hope everyone has a great week!! Oh yeah, Emma has to have a physical this Thursday since they want her to have it before the surgery. I will update after that. :)