2 Different Specialists in 2 Days..whew!

This will probably be a long update and hopefully it makes sense lol. Yesterday Emma went down to Nemours Hospital in Jacksonville and saw an Infectious Disease doctor named Dr. Midani. He is amazing! He was VERY thorough and spent an hour in the room talking to me about Emma. He ordered a sinus x ray just to rule out that she didn't have an ongoing sinus infection (which she didn't) and had more blood work done to re check her immune system. He also suggested seeing an ENT which was already scheduled for today up here in Valdosta. So, Dr. Midani said that him and I will both make decisions on what is best for Emma and will go hand in hand in her treatments so that made me feel a million times better. So, we go back in 4 weeks to see him again but in the mean time I have to keep a diary of all of her symptoms and anytime she gets sick between now and then. So, today we saw Dr. Phillips in Valdosta. I had him check her ears to see if her tubes had came out and unfortunately somehow she has so much wax built up in her ears it is impacted in there. :( Also, he agreed that doing a bronchoscope would be a good idea to check out her throat and see if she has any issues in there. Unfortunately, if she does have anything wrong, he will not be able to fix it since Valdosta does not have a pediatric hospital or even a pediatric ICU so she would have to be sent to Jacksonville or Atlanta. I have decided though to just try to get her in with the ENT doctor down at Nemours that way we are at a pediatric hospital in case something is wrong they could fix it then and she would not have to be put to sleep twice. I just want what is best for Emma and I think her being at a hospital just for children is the best choice especially since my mama brain always thinks of the "what-ifs". I will call tomorrow and get an appointment scheduled for that. So, as of right now we just wait on more test results to come in and see when her next appointment will be. I feel like all we do is go to doctor appointments but I have faith that in the long run it will be worth it and hopefully we will have some answers soon! Like I put on my FB page..I know I complain about Emma always being sick and us not knowing what is wrong but after seeing 3 kids with cancer while we were at Nemours yesterday I know that things could always be worse. I am THANKFUL that her issues are all that is wrong...at least she is alive and more the most part healthy...I couldn't imagine if she had a terminal illness. :( Anyway, I will update more when we get results or when I know when her appointment will be with the ENT doctor at Nemours. :) Hope everyone has a great Tuesday!

Winds of Change are Blowin'

Well I'm sure the title is intriguing huh? :) Let's just say, tomorrow will start a new chapter in mine and Emma's life and I think it's finally time. I can't wait to do what's best for her and myself and hope everyone can support my decisions I will be making in the future. Now, about Emma..she is sick again as usual. Fever, cough, congestion. It never ends. So I took things into my own hands and now she has an appointment with an Infectious Disease doctor at Nemours Hospital in Jacksonville on Monday. When we were living down there she was actually supposed to go see him but we ended up moving back but she will be going now and hopefully he has some ideas or can lead us in the right direction. I know some may disagree with my decision about having these tests done but I'm just so tired of not having answers and not being able to help my baby. I'd rather go ahead and get everything done with now than keep prolonging things and her still getting sick with no answers. Anyway, Emma and I are house hunting (to rent) in Homerville so she can keep going to school there and I will be doing massages there soon so it only makes sense to live there. I am trying to be optimistic that everything happens for a reason and when the time is right so hopefully things fall into place soon for us. I'm focusing on being the best mom I can be and making sure she is taken care of work..that's about it. I've learned that no matter how much you *want* something that there are just some things you can't control and you just have to learn to accept that and move on. So, that's what we are doing. I'm not saying things will be easy for us but hopefully the saying is right...Just because it isn't easy doesn't mean it's not worth it. Also, I deactivated my personal Facebook so I'm not even sure if anyone will read this but it's really just for myself to vent on and keep those few that do keep up with us updated. Anyway, I will update again soon and if not before Monday, I will definitely update after her appointment. On another note, please keep the people of Boston in your prayers as they deal with this horrible tragedy. I couldn't imagine something like that happening here. Remember, today we are all Bostonians. Hope everyone has a great week.

Update from the appointment today

Well Emma's appointment today didn't go quite like I was expecting. He switched her to a different allergy medicine that she will be taking daily and some more meds to take as needed when her "asthma" flares up. He also said for right now he doesn't want to put her through anymore testing for a couple of months to give her body a break. I know she needs a break but I just want some answers. I'm just torn on this right now..It's been a long 4 and a half years of not having any answers and I'm so tired of her being sick all the time and no one being able to tell me why. :/ So, now I wonder if I find another doctor on my own or just wait it out and see what happens? Right now we both just need a break so who knows. I will update this more later and I think I'm going to go back to making this just a personal blog which will be about mine and her lives..medical issues and personal issues. Any suggestions or ideas on that? On another note, everyone please say a prayer for a classmate of Emma's that was bitten by a snake today while at the rec park playing ball...not sure what the status is on him but I do know they didn't have to life flight him out and he was at SGMC being treated. Please just keep him and his family in your prayers. Thanks!

Wow, What a Week!

Well, it has been a week to say the least. Easter Sunday Emma woke up coughing really bad and actually asking for a breathing treatment and running a high fever. Throughout the day her cough got a little better but she kept a fever off and on. On Monday morning we took a nine hour ride to Mississippi and she was still sick so on Tuesday I had her doctor's office call in some antibiotics for her up in Mississippi. She has been on them since Tuesday evening and still runs a fever off and on and still has a real congested cough. I called Friday to find out if they had received her hospital records from Nemours Children's Hospital in Jacksonville and they had so hopefully tomorrow they will call and set up her sleep study and let me know what the next steps are in figuring out why my boogie bear stays sick. I will update again when I know more. Thanks to those that are reading this. :)