2 Different Specialists in 2 Days..whew!

This will probably be a long update and hopefully it makes sense lol. Yesterday Emma went down to Nemours Hospital in Jacksonville and saw an Infectious Disease doctor named Dr. Midani. He is amazing! He was VERY thorough and spent an hour in the room talking to me about Emma. He ordered a sinus x ray just to rule out that she didn't have an ongoing sinus infection (which she didn't) and had more blood work done to re check her immune system. He also suggested seeing an ENT which was already scheduled for today up here in Valdosta. So, Dr. Midani said that him and I will both make decisions on what is best for Emma and will go hand in hand in her treatments so that made me feel a million times better. So, we go back in 4 weeks to see him again but in the mean time I have to keep a diary of all of her symptoms and anytime she gets sick between now and then. So, today we saw Dr. Phillips in Valdosta. I had him check her ears to see if her tubes had came out and unfortunately somehow she has so much wax built up in her ears it is impacted in there. :( Also, he agreed that doing a bronchoscope would be a good idea to check out her throat and see if she has any issues in there. Unfortunately, if she does have anything wrong, he will not be able to fix it since Valdosta does not have a pediatric hospital or even a pediatric ICU so she would have to be sent to Jacksonville or Atlanta. I have decided though to just try to get her in with the ENT doctor down at Nemours that way we are at a pediatric hospital in case something is wrong they could fix it then and she would not have to be put to sleep twice. I just want what is best for Emma and I think her being at a hospital just for children is the best choice especially since my mama brain always thinks of the "what-ifs". I will call tomorrow and get an appointment scheduled for that. So, as of right now we just wait on more test results to come in and see when her next appointment will be. I feel like all we do is go to doctor appointments but I have faith that in the long run it will be worth it and hopefully we will have some answers soon! Like I put on my FB page..I know I complain about Emma always being sick and us not knowing what is wrong but after seeing 3 kids with cancer while we were at Nemours yesterday I know that things could always be worse. I am THANKFUL that her issues are all that is wrong...at least she is alive and more the most part healthy...I couldn't imagine if she had a terminal illness. :( Anyway, I will update more when we get results or when I know when her appointment will be with the ENT doctor at Nemours. :) Hope everyone has a great Tuesday!